9-year-old TJ's story of inspiration - KFVS12 News & Weather Cape Girardeau, Carbondale, Poplar Bluff

9-year-old TJ's story of inspiration

Posted: Updated:
At 9 years old TJ Williams been through more than most of us can even imagine. At 9 years old TJ Williams been through more than most of us can even imagine.
"You can see it in his eyes, he doesn't have to say I love you...you can just see it," said Trevor Williams, TJ's dad. "You can see it in his eyes, he doesn't have to say I love you...you can just see it," said Trevor Williams, TJ's dad.
TJ turns 10 next month. There is a special benefit for him Saturday May 5, 2012 at the Elks Lodge in Jackson. TJ turns 10 next month. There is a special benefit for him Saturday May 5, 2012 at the Elks Lodge in Jackson.
On March 19, 2012, TJ underwent a double hip reconstruction due to severe hip dysplasia. On March 19, 2012, TJ underwent a double hip reconstruction due to severe hip dysplasia.
At four months old, he underwent brain surgery. At four months old, he underwent brain surgery.
  • SPONSORED BY SOUTHEAST HEALTHMore>>

  • Quinn signs epinephrine law for Illinois schools

    Quinn signs epinephrine law for Illinois schools

    Wednesday, July 30 2014 6:36 PM EDT2014-07-30 22:36:36 GMT
    A new bill signed into Illinois law says trained personnel at schools statewide will be able to administer injectable epinephrine for those appearing to have strong allergic reactions.
    A new bill signed into Illinois law says trained personnel at schools statewide will be able to administer injectable epinephrine for those appearing to have strong allergic reactions.
  • Illinois Medicaid restricts use of hepatitis drug

    Illinois Medicaid restricts use of hepatitis drug

    Wednesday, July 30 2014 2:41 PM EDT2014-07-30 18:41:49 GMT
    Illinois is placing tight restrictions on a new hepatitis C drug that costs $1,000 per pill. Medicaid patients must meet 25 criteria and get prior approval before the government health care program will pay for...
    Illinois is placing tight restrictions on a new hepatitis C drug that costs $1,000 per pill. Medicaid patients must meet 25 criteria and get prior approval before the government health care program will pay for Sovaldi.
  • Surgeon general issues skin cancer warning

    Surgeon general issues skin cancer warning

    Wednesday, July 30 2014 11:04 AM EDT2014-07-30 15:04:38 GMT
    Nearly 5 million people are treated for skin cancer each year - more than cases of breast, prostate, lung and colon cancer combined.
    Nearly 5 million people are treated for skin cancer each year - more than cases of breast, prostate, lung and colon cancer combined.
CAPE GIRARDEAU, MO (KFVS) -

At 9 years old he's been through more than most of us can even imagine.

"He's such an inspiration, so strong and such a fighter," said Callie Williams.

TJ Williams was born with a rare brain defect.

"It's called hemimegalencephaly," said Callie Williams, TJ's mom. "It causes severe epilepsy. When he was born he had a seizure every seven minutes."

At four months old, he underwent brain surgery.

"They took out the entire right portion of his brain," said Callie Williams. 

The seizures stopped, thanks to that surgery and medications.

In 2010, TJ suffered another big setback. His kidneys shutdown out of nowhere. His mother says he got severely sick and lost 15-20 pounds.

Doctors diagnosed him with Acute Intermittent Porphyria. It's a genetic disease that was triggered by his seizure medications.

"He is the only child within 35 years in the U.S. that has been diagnosed with the disease," said Callie Williams. 

"We try to give him the most normal life that we can," said Trevor Williams, TJ's dad. 

It's a constant challenge as more and more trials come their way. 

On March 19, 2012, TJ underwent a double hip reconstruction due to severe hip dysplasia.

He's still pretty sore from that surgery. He goes to physical therapy three times a week.

TJ doesn't walk or talk.

"You can see it in his eyes, he doesn't have to say I love you...you can just see it," said Trevor Williams. 

His parents pray everyday for a miracle.

"I have dreams all the time that he's going to walk," said Trevor Williams. 

They used to ask the question "why", but no longer.

"We both feel we were chosen to take care of one of God's special kids and that's how we feel that God trusted us to take care of him," said Trevor Williams. 

They make the best of every moment.

"Now we're at the point where we are doing what we can to make him happy and every moment enjoyable while he's here," said Callie Williams. 

He's a child who has brought so much joy, and continues to love life despite his limitations.

"It's going to come to a point where the seizures become uncontrollable as he gets older," said Callie Williams. 

For now they rely on smiles from TJ, and their faith.

"We put it in God's hands," said Callie Williams. 

TJ turns 10 next month. There is a special benefit for him Saturday May 5, 2012 at the Elks Lodge in Jackson.

It will be held in the lower level from 5 to 11 p.m.

Tickets are $20, and includes a dinner/dance. There will also be a silent auction, full cash bar, and much more.

Tickets can be purchased at the door.

Copyright 2012 KFVS. All Rights Reserved.

Powered by WorldNow

310 Broadway
Cape Girardeau, MO 63701

FCC Public File
publicfile@kfvs12.com
573-335-1212
EEO Report
Closed Captioning

All content © Copyright 2000 - 2014 Worldnow and KFVS12. All Rights Reserved.
For more information on this site, please read our Privacy Policy and Terms of Service.